Shantee Anaquod pictured with her younger brother, Jonathan, before becoming sick. After two months of being bed ridden in a hospital, Anaquod gets to spend Christmas at home with her family. Submitted photo

Shantee Anaquod pictured with her younger brother, Jonathan, before becoming sick. After two months of being bed ridden in a hospital, Anaquod gets to spend Christmas at home with her family. Submitted photo

VIDEO: AHUS patient Shantee Anaquod is home for Christmas

Less than a month after receiving first dose of $750K drug, 23 year old healthy enough to go home

It’s a Christmas present Shantee Anaquod didn’t think she’d get.

Two months after being diagnosed with the rare blood disease Atypical Hemolytic Uremic Syndrome (aHUS), Shantee, 23, will get to spend the holidays at home with her family.

The UBC student has been in hospital since Oct. 15, when flu-like symptoms escalated into a life-threatening condition. The treatment used for the disease — Soliris — costs $750,000 per year to administer, and was not covered by extended medical or the government.

READ MORE: Langley mom pleads for help in securing $750,000 life-saving drug for daughter

READ MORE: Government approves funding of $750,000 drug for B.C. woman

But after a storm of media attention, the government agreed to finance the drug, and less than a month after her first dose, Shantee is well enough to return home.

“I was really excited — super excited — because I was just waiting to know when I was going to go home,” Shantee told the Langley Times during a Soliris appointment at Vancouver General Hospital on Tuesday.

“I have more energy, and I feel like I’m getting stronger, slowly, so that’s nice. I don’t have as much pain in my body.”

Shantee was officially discharged from the hospital in the afternoon on Dec. 14, and spent the first two nights at her mom’s house. Last weekend, she was able to return to her rental in Vancouver, where she lives with three roommates.

“It was pretty great, I got a lot of sleep and got to do what I want,” Shantee said of her first night home. “It’s a little harder managing everything without a nurse … but my boyfriend helps me out quite a bit, though. He brings me food and makes sure that I can get up the stairs.”

Equally as excited about Shantee’s recovery is her family. Shantee’s brother, Jonathan, 9, made it his birthday and Christmas wish to have his sister home for the holidays.

“Just her being home, the idea of not having to celebrate Christmas in the hospital or bring her out on a day pass is phenomenal,” said her mother, Jennifer.

“And she’s been looking at turkey recipes for the last three weeks, she’s determined to cook the turkey this year.

“It’s been pretty great watching her get a little bit better every week.”

No one, including Shantee, knew that she would be discharged from hospital so soon. She still has to take a significant amount of medication every day, and undergo dialysis three to four times per week. Her Soliris dosage — which takes about an hour to administer — will now be reduced from once a week to every second week.

She also lost 25 pounds in the last two months, and has to work on gaining back her weight and strength.

“They had told us (she would be discharged) Wednesday (Dec. 13), and then Wednesday came and they said, ‘No you can’t go. Your breathing is not good enough yet, maybe we’ll look at Friday or Saturday,’” Jennifer told the Langley Times last week.

“And then she called me yesterday (Dec. 14) — I was at my staff luncheon — and said, ‘I’m going. They’re discharging me, I’m going home.’

“I was like, ‘What?’ So yeah, we had no idea.”

To make the holidays even better, Jennifer has her own homecoming to celebrate.

As she coped with Shantee’s medical battle, Jennifer also had to deal with another emergency at her house in Langley. Shortly before Shantee became ill, her neighbour’s hot water tank exploded and flooded her home. Jennifer and Jonathan spent the last couple of months in a furnished apartment in Langley City provided by her insurance.

Just a couple of weeks ago, they finally moved into a new, permanent home at a co-op in Surrey.

“I don’t know how it happened. Usually the waiting list is years, but for whatever reason, they called and we got in. So that was really well timed,” Jennifer said.

READ MORE: Langley teen seeks funding for $750,000 drug Soliris

Now, the Anaquod family is paying it forward by helping others with medical struggles. They are using what they learned through the process of obtaining Soliris to advocate for six-year-old Landen Alexa from Sooke, who is in need of a $19,000-per-month drug to treat Systemic Juvinile Idiopathic Arthrits.

Charity Cassie+Friends has been campaigning on behalf of Landen, and it just so happens that the same charity helped out Jonathan through treatments for his rare disorder, Behcet’s disease.

READ MORE: Six-year-old boy needs $19,000 a month to treat rare form of arthritis

“How things work behind the scenes was really surprising. And knowing there’s so much red tape and so many barriers to access medications and health care, for not just Shantee, but for so many people out there. I think that’s really, it was shocking to me,” Jennifer said.

“There’s been quite a few people reaching out already, so I try to connect with everybody that I can. I wish I had a magic answer.”



miranda@langleytimes.com

Like us on Facebook and follow us on Twitter

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

The Cowichan Valley Arts Council is offering courses in drawing May through August 2021. (Submitted)
A&E column: Art is everywhere in the Cowichan Valley

What’s going in the Cowichan Valley arts and entertainment community

The CVRD introduces new app to contact residents during emergencies, a tool that chairman Aaron Stone says will improve communications. (File photo)
CVRD launches new app to spread information during emergencies

Cowichan Alert is a free app that can be downloaded onto smartphones, computers

A B.C. Centre for Disease Control map showing new COVID-19 cases by local health area for the week of April 25-May 1. (BCCDC image)
Vancouver Island’s COVID-19 case counts continue to trend down

Fewer than 200 active cases on the Island, down from highs of 500-plus earlier this spring

The Malahat SkyWalk will open to visitors in July 2021. (Malahat SkyWalk photo)
Malahat SkyWalk will open to visitors this July

Highly anticipated attraction will take guests 250m above sea level

FILE PHOTO
Editorial: Time to roll up our sleeves and pitch in

They’re just not quite sure they want to get a vaccine — yet

Protesters attempt to stop clear-cutting of old-growth trees in Fairy Creek near Port Renfrew. (Will O’Connell photo)
VIDEO: Workers, activists clash at site of Vancouver Island logging operation

Forest license holders asking for independent investigation into incident

Starting Tuesday, May 11, B.C. adults born in 1981 and earlier will be able to register for a vaccine dose. (Haley Ritchie/Black Press Media)
BC adults 40+ eligible to book COVID-19 vaccinations next week

Starting Tuesday, people born in 1981 and earlier will be able to schedule their inoculation against the virus

Parks Canada and Tla-o-qui-aht Tribal Parks dig the washed up Princess M out from sand along the south shore of the Pacific Rim National Park Reserve. (Nora O’Malley photo)
Rescue attempt costs man his boat off Pacific Rim National Park Reserve

Coast Guard response questioned after volunteer responder’s speedboat capsizes in heavy swells

Al Kowalko shows off the province’s first electric school bus, running kids to three elementary and two secondary schools on the West Shore. (Zoe Ducklow/News Staff)
B.C.’s first electric school bus making the rounds in Victoria suburbs

No emissions, no fuel costs and less maintenance will offset the $750K upfront expense

Road sign on Highway 1 west of Hope warns drivers of COVID-19 essential travel road checks on the highways into the B.C. Interior. (Jessica Peters/Chilliwack Progress)
B.C. residents want travel checks at Alberta border, MLA says

Police road checks in place at highways out of Vancouver area

Victoria police say the photo they circulated of an alleged cat thief was actually a woman taking her own cat to the vet. (Black Press Media File Photo)
Photo of suspected cat thief released by Victoria police actually just woman with her pet

Police learned the she didn’t steal Penelope the cat, and was actually taking her cat to the vet

The Canadian Coast Guard icebreaker Louis S. St-Laurent sails past a iceberg in Lancaster Sound, Friday, July 11, 2008. The federal government is expected to end nearly two years of mystery today and reveal its plan to build a new, long overdue heavy icebreaker for the Canadian Coast Guard. THE CANADIAN PRESS/Jonathan Hayward
Vancouver, Quebec shipyards to each get new heavy icebreaker, cost remains a mystery

Vancouver’s Seaspan Shipyards and Quebec-based Chantier Davie will each build an icebreaker for the coast guard

Findings indicate a culture of racism, misogyny and bullying has gripped the game with 64 per cent of people involved saying players bully others outside of the rink. (Pixabay)
Misogyny, racism and bullying prevalent across Canadian youth hockey, survey finds

56% of youth hockey players and coaches say disrespect to women is a problem in Canada’s sport

Most Read