Maureen Kennah-Hafstein plans to continue her fight to get increased funding from the B.C. Government for Deep Brain Stimulation surgery. (Jim Elliot/Salmon Arm Observer)

B.C. health minister offers no remedy for surgical wait time

Parkinson’s patient continues quest for province to fund more procedures

It appears Maureen Hafstein and other Parkinson’s patients like her will continue to wait on one of the longest lists in the country for Deep Brain Stimulation (DBS) surgery, despite the fact that the waiting may make them miss their chance at the procedure altogether.

Shuswap MLA Greg Kyllo said after repeatedly being told Health Minister Adrian Dix would get back to him last week, he informed the Observer he had heard from Dix on Monday morning.

“He was careful in his comments, saying that the health authorities are allocated base funding for surgeries and they are in the best position to make the determination about where there are the greatest pressures and the greatest needs,” said Kyllo.

Kyllo says the argument that health-care decisions should not be coming from government is valid, but he notes there have been a number of cases where governments have become involved in such decisions.

He points to the situation where the government is providing targeted health-care funding specifically for performing hip and knee replacement surgeries and reducing wait times.

“He reluctantly agreed there was a decision made to target those wait times,” Kyllo said. “It’s kind of like picking winners and losers here.”

Dix’s office did not respond to the Observer’s request for an interview.

Meanwhile Hafstein says she is not giving up in her quest to bring attention to the wait list issue for Parkinson’s patients throughout B.C.

“To think that a province of our size has only one surgeon… The people of B.C. deserve better from our medical system. I will pursue the option of going out of province for surgery if I have to,” Hafstein said by text, as her Parkinson’s impairs her ability to speak.

Related link: Salmon Arm woman fights for a life-changing surgery

Dix’s office gave an email address for the chief of surgery at Vancouver General to Kyllo to give to Hafstein and suggested she take her case to him. But Hafstein isn’t sure this would change anything and says solving her own issue won’t help the other patients still waiting on the list.

“I want to be clear that I am not wanting to jump ahead of anyone in line. I am asking for increased funding so that everyone will benefit,” she said.

Hafstein plans to continue her letter-writing campaign and is still going to try and arrange a face-to-face meeting with Dix to discuss the situation.

Kyllo says the DBS surgery in B.C. is funded at a cost of approximately $1 million a year.

Only one doctor in B.C., Dr. Christopher Honey, is currently performing the procedure at either Vancouver General or UBC. This compares to Alberta, which has two surgeons performing DBS, Quebec has four, Manitoba has two and Saskatchewan has two. The Canadian average for DBS surgery is one surgeon for every two million people. In B.C. the rate is one surgeon for 4.5 million.

Parkinson’s Disease is a complex degenerative brain disorder that affects a person’s ability to move. While DBS is not a cure, it can provide a significant impact on the patient’s health and quality of life — often helping to slow the progression of the disease for many years. For the DBS surgery to have benefits, it must be done within a certain window of time. If the patient’s symptoms become too severe, the operation no longer has a good chance of success and those patients become no longer eligible for the procedure.

Related Link: In this corner, hope

Currently, Honey says most of his patients are waiting two years and he notes the B.C. standard target for surgical wait time is supposed to be 26 weeks.

Honey has trained another surgeon to perform DBS surgery, but without funding from the government for this surgeon and for equipping another operating room, no additional DBS procedures can be scheduled.

Honey says lobbying for additional funding has been an education in the political system.

“My patients, you see, have very complex medical needs and many of them are simply too ill to advocate for themselves. They are quiet and suffer mostly in silence… There’s only about 70 to 80 people I see each year. Any politician can afford to lose 70 to 80 votes.”


@SalmonArm
newsroom@saobserver.net

Like us on Facebook and follow us on Twitter

Just Posted

Mary Lowther column: Flocculation and other dirty chemical reactions

Regardless of soil type your compost will benefit enormously with the addition of clay.

Duncan Pirates named most sportsmanlike at Hopwo tourney

Ladysmith teams take three of top four spots

No easy answers for Cowichan River access through private property

Trespassing on land adjacent to Cowichan River continues

HarbourCats a hit in Cowichan Valley

Victoria ball team stops in Duncan, Chemainus, Ladysmith and Lake Cowichan

VIDEO: ‘My Funny Valentine’ delves into effect of tragedy

When a teenage boy is killed for an innocent question, the answers are hard to take

In reversal, Trump signs executive order to stop family separation

President had been wrongly insisting he had no choice but to separate families apprehended at border

New Jersey forward Taylor Hall wins Hart Trophy as NHL MVP

Vancouver’s Sedin brothers share King Clancy Award for humanitarian efforts

GoFundMe page launched for families of missing Vancouver Island fishermen

Search for three men whose vessel capsized near Tofino on June 15 continues.

50 new fires sparked in B.C. after lightning strikes across province

Similar conditions seen at the beginning of 2017 wildfire season

B.C. woman graduates high school at age 92

Nanaimo’s Joan Deebank the oldest high school graduate ever in B.C., as far as ministry can confirm

B.C. Appeal Court rules lottery winner must be paid back $600,000 loan

Enone Rosas won $4.1 million in a lottery in 2007 and loaned a portion to a friend

B.C. man surprised after used needle falls from sky

A Vernon resident said a syringe fell out of the sky and landed at his feet

Liquor review finds issues with B.C. wholesale monopoly

Report calls for ‘conflict of interest’ in system to be fixed

Police look for driver of blue Jeep who may have helped at fatal crash

A 19-year-old girl was killed in a crash near Delta on June 2

Most Read